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Please note: my blog is full of my thoughts, opinions (which are not always "right"), random things relating to my family and friends and the occasional Cut and Paste news.... whatever is important to me. I ramble on from time to time (that's the St. Sauveur in me) and at the end of whatever I wrote you may question what on earth I was thinking or it may not even make sense to you.....sorry....I warned you. You may not always like what you read (I do have an insane case of "Potty Mouth" which I try to hide on here, but it won't always happen) or what you see, but we all have our own opinions on things. Feel free to ask questions or leave comments. I do ask that you please leave your name so I know who I'm responding to. If you want to email me privately you may do so at imninstar@yahoo.com Thanks
Showing posts with label Shriners. Show all posts
Showing posts with label Shriners. Show all posts

Monday, March 18, 2013

Tabbie love

Little Miss Taylor has been quite the busy bee and making Mommy busy too ;)

Tayt just received a HUGE care package full of letters and picture from the Bethlehem NH kindergartners on top of the thousands of tabs they have been saving for her. She was pretty excited to say the least.

That following Friday Grandmama, Auntie Lisa and GG went down to Shriners Hospital in Springfield to present our 6 month old tab pile which consisted of approximately 650 pounds. We didn't get to go on this adventure because Taylor was sick but we did finally make it down Monday to drop off another 25 pounds of tabs that were dropped off in our North Walpole well over the weekend. And while we were there, little Mayhem was also fitted for her 6th Armie. She's still sticking with Dora the explorer and boots the monkey but this one is purple.

Saturday brought more tab love when we were invited to the BPOE in Springfield Vt so that the Elks members and Moose members could present the tabs they have been saving to Taylor personally. We were also able to visit with some Shriners who were there :) and now on top of all the excitement with the 60th Maple Sugar Bowl and Taylor's "queen status" we'll be making a few other appearances too.











Sunday, November 18, 2012

A night with the men of Melha


After my presentation at the VT Shriners Ball this summer, we were invited to the Fall Ceremonial at Melha Shriners in Springfield MA. 

At this ceremony they welcomed new members into their Shrine. This activity is not usually open to "outsiders" but for this ceremony they invited 8 of us to join them. During this celebration, the new members performed a skit. I'm not sure how much of that skit is privileged info so I'll only share a brief, edited bit. Towards the end, as a member narrated the actions happening on the stage, the Masons built a temple. On the top of this temple were stones with different symbols that are very meaningful to the members. They lifted the last of the stones to the top of the temple and the symbol on this one was the Shriners' emblem. As I watched from back stage I was having a hard time keeping myself together. Once the Temple was complete, a child (my eldest daughter Ashtyn), was wheeled, in a wheelchair, out onto the stage and the Shriner picked up the crutches and then the child and carried her.

"No man stands so tall as when he stoops to help a child" - Abraham Lincoln


I can't even begin to tell you how hard it was not to cry. Even as I write this, I'm tearing up. This is what Shriners do and have done for almost 100 years and all that they do, they do to help children, and one of those children is mine.

After the performance, we watched a video of 2012's Patient Ambassadors and then presentations from the three guest speakers. Two are current Shriners Hospitals patients, and the third, the scary part, was myself. There was a 4th Shriners patient there with us as well but he let his sister Molly do the talking. She did an absolutely wonderful job, as did Meg Moore. It was great to hear their stories and memories of their visits to the Springfield hospital. Its funny, we all had the same fears and now share the same thoughts and experiences, even though our needs and reasons for being there are completely different. I was already nervous about speaking to begin with but then Molly wheeled out onto the floor to share her and her brother's experiences and their love for the hospital, and then Meg wheeled out to do the same as she shared hers with the aid of her computer speaking program, it was all I had not to melt.   

I know that Shriners Hospital does amazing things. I've seen a lot of their miracles first hand but I still sometimes forget just how much they do. And while to some people, having one hand would be the end of the world in their minds, Taylor's needs are so small and she can do anything. Some of the children Shriners Hospitals help, just like the three wonderful patients we met tonight, even after the miracles are done, they are still unable to speak or walk and do other things a lot of us take for granted. 

My presentation began with my video/slideshow of Taylor. I changed it up a little bit so it wasn't the exact same one I showed in Vermont but it still had the same effect. Everyone listened to Lady Gaga sing "Born this way" and watch Taylor begin as a little blip on the ultrasound monitor, receive her first, second, all the way to 5th Armie, see the loving family she has, the Shriners and friends we've met along the way and the finale, one of the best things I have ever experienced.....

...... proof that the Springfield Shriners Hospital would stay open!

And as the video plays, Taylor is dancing around going "That's me! This is my movie" and just captivating the audience. Then, when the music ends, the three of us head to the podium and instead of me talking to the crowd, Taylor took the mic and attempted to tell them something about herself when she was a baby and then said "Thank you" to everyone in the room. They all applauded her and then played her video again so she could dance around some more. Then it was time for me to hold back the tears and try to speak. This was a little easier to do than concentrate as the girls took the stage behind me. They climbed up, they climbed down, they jumped, and just went goofy. As I got to the part of "nothing will ever slow her down" we all kind of laughed as I thanked them for loading the girls up on chocolates, sugar cookies and coca cola before the ceremony. I shared with them a few of our experiences at the Springfield hospital and made sure they know that we love the staff  and even mentioned just how awesome Brock, Jim, Rob and Debi are. 

I somehow managed to get through it without tears and for the second time a bunch of grown men in the audience did not. I met with some of them during the intermission and they shared with me their stories of how they were once Shriners patients or their children were or are and one gentleman was going through a similar ordeal to my ultrasound right now. 

I'll never get used to Shriners thanking me. If it wasn't for them, I wouldn't do what I do. They are the miracle workers. I'm just a grateful mom trying to thank them for what they do for all the kids out there.

Our night ended with enjoying the different Shrine groups introducing themselves and showing off their talents. The marching band, the drummers, the highlanders.....let me rephrase that: THE HIGHLANDERS! I get to see them maybe once a year, if i'm lucky. AWESOME! I love bagpipes!!! , the bikers (haha "American made rides up front, all others to the back! YES! ) , the clowns. BRING ON THE CLOWNS! 


Lookout "Schmeckles" I think Ashtyn's in love with "Fix It". And "Clueless", you better get to Clown College, these guys know how to make balloon animals. "Cheer Up" , you had them at "hello".

The girls went out with the clowns as they did their performance and had a blast! And then as the other groups came out, Ashtyn and Taylor bounced balloons on the stage as the "higher ups" tried to listen. Everyone thought it was great as I nervously watched, waiting for the over-tired crankiness to become unstoppable. We said our final goodbyes as they set up for dinner. I knew at any moment Chaos was going to self combust. We headed out to the parking lot and Ashtyn began to sob. One of the Shriners was out front with his Lady and she came to the rescue. She brought the girls over to her car and let them pick out a toy for their ride home. This stopped the waterworks long enough to leave the parking lot but I had to promise her a happy meal to ensure the rest of the ride went smoothly.

Thank you everyone at Melha for showing us a wonderful time and for everything you've done and everything you do.........changing the world by caring for kids and helping those kids defy the odds!

Wednesday, June 20, 2012

Shriners Ball Photos







Saturday, April 3, 2010

Bektash Shrine, Concord, NH



Hopefully the weather (and girls) cooperate tomorrow so I can attempt to get some better pictures on our way home.

The pictures I took of Jeremy and Taylor came out pretty good, with the exception that neither of them were smiling :( The sun was being kind of evil though....it was blindingly bright.

Thursday, July 30, 2009

The best place on earth






It was punk day for miss Taylor...she finally has some hair...I felt the need to show it by putting it in a mohawk

The girls and I went to Shriners Hospital yesterday to get Taylor's new arm. Every time I go there I love it more and more. We got there ridiculously early but it never really matters, there's so many people to see and talk to and wonderful things to look at and things to do. Ashtyn and I had a quick lunch outside since Taylor was sleeping when we pulled in and then I grabbed the gigantic trash bag of soda tabs

(this is only a portion of what I brought in....and yes that is a 5 gallon bucket... Many thanks to the Ladies Auxiliary in Charlestown.....we love you)

and Taylor and in we went. We weren't even there 5 minutes and Ashtyn was ready to live there forever. Her big thrill for the day was getting to see Sulley (from Monsters, Inc)....well that "big" adventure was tossed out to see Daffy Duck, Bugs Bunny, Tweety Bird, Sylvester and Pepere LePew who were visiting Shriners Hospital from Six Flags. Tweety was in love with Taylor, Ashtyn was in love with all of them, and Taylor was kind of like, why are these "little" animals bigger than me?

I thought Ashtyn might have a break down when the characters left but luckily there were some volunteers with a playdough station set up....crisis avoided...yay. Someone didn't show for their appointment, so we had ours early.... We got her new arm and then Rob (her prosthetist) showed me how to change the hand.....6 months of having this thing, I would have thought I would have figured that one out on my own....duh.... so she has 2 hands or her prosthetic now.... the new one is a bit larger than the old one and her real hand...its Ashtyn's size...or maybe a little bigger...but its the only size they make that hand in...she'll grow into it. And I know Kristy (her therapist) will work her magic teaching skill wand and Taylor will be a pro at using it and picking things up with it in no time. After our visit in O&P we went out to the lobby area and hung out there for at least an hour. Seriously this place is just awesome. I know I'm a pretty boring individual, but SHC rocks! We hung out with the receptionists and Ashtyn and Taylor played with the ball machine thingy.... and a Shriner from Pyramid Shrine in CT, Robert "Bob" Harriman and his wonderful wife..... I'm so sorry I forgot your name..... they played with the kids and spoke with me... it was a wonderful time. Bob put his Fez on Taylor, it was so cute. And of cource as usual my pictures are super limited.....I need to drag someone with me on visits just to take pictures for me. The publicity crew did take a bunch of pics of me and the girls with the characters and when I get the email, I post those pics too.


Bob and Taylor


The ball machine thingy....and Ashtyn's favorite seat


A good sign :)


It was a great time and a great day...even with the over tiredness..... I'll post some pics of Taylor's new arm today hopefully...she wasn't very interested in any more photos being taken last night.


These are the pics they took of us...

Can't tell I'm embarrased....