http://www.youtube.com/watch?v=9hyVRP0lToY&feature=youtube_gdata_player
- Sent from my Palm Pixi
Tuesday, November 29, 2011
SuperMom, Hanna Rapini, speaks before Congress
Saturday, June 25, 2011
YouTube video of Taylor's new arm
http://www.youtube.com/watch?v=YKNyuMtaC9A - Taylor's Newest Prosthetic Arm
- Sent from my Palm Pixi
Friday, June 24, 2011
Another Shriners Hospital Adventure
What an adventure.....poor kids.....they were cooped up all day wednesday at my job, then stuck in the car (luckily for me they were asleep) until 1am thursday, then crawl their little bums into the house to continue sleeping until 6:30-7 then get back in the car. We arrived at Shriners at 9:50 and that's where we stayed until around 2:30. (Which actually wasn't a long day there but the girls I think had a slightly different opinion.....)
It was a full on kiddo rainbow in Springfield yesterday. Armies, Leggies, Cleft lip pre and post op, you name it. A building full of beautiful, perfect babies and children. Taylor was the center of Makayla's (also an LBE kiddo) attention. She was pretty excited to see another kid, especially a girl, with a limb difference too. It took Taylor a while to realize other kids there were just like her and then she nubbie bumped everyone including her OT, Debi.
Miss Muffet wasn't always so friendly yesterday though. When she saw her new arm she was all excited. 'Lookie Mom my Dora Armie' and she put it on. Then she took it off and didn't want any part of it. OMG! So Rob (the almighty armie maker/fixer) and I are trying to coax her into cooperating so he can figure out if her harness is too long too small whatever, and Taylor wants no part of it. She is a mini NinJeremya! Wow stubborn much.
We eventually win (with bribery) and she puts armie back on. And the leash (harness) is too long. But she won't wear her [nub] sock and after the battle to get her prosthetic on, we're not taking it off to adjust the leash or address the sock absence. So we run to visit with Debi upstairs for a bit and Taylor shows everyone she can open and close her new hand (this one has the body powered hook instead of the opening closing fakie hand she had last time) and then she takes it off.
Debi showed Taylor how she takes off her prosthetic (she's an all knowing and totally awesome, resourceful, informative....yes I can keep going.... Inventor, blogger, OT, RBE), and how she puts it on trying to get Taylor to do them same with hers. Instead Taylor was all excited and curious about the powder on Debi's nubbie. So Taylor tried to steal her powder by giving repeated nub bumps. So Debi ran around and found Taylor her own bottle of powder. We now have that side track done and Taylor finally shows that she can put on her arm and the leash all on her own.
Next, Taylor shows Debi she can open and close her new armie by opening the hook and then closing it on Debi's nose. Mind you this was Debi's idea, and she pulled back so Taylor didn't cause any harm. Then, in walks a kiddo and her family. Side track number 57......Taylor shows them she can open & close the hand and then takes off her arm to show them her nub. Here we go again. Now she wasn't excited about it again. At this point Rob tracked us down to check on how Taylor was doing and saw his opportunity to adjust her cord and harness so he snagged her new armie to go and fix it up, and we finished up with Debi. We eventually make our way back downstairs to meet back with Rob. Now her arms all set and we have battle royale again. We won and Taylor put on her armie and we were good to go. So we say our goodbyes and make our way to the car. I loaded up the kids and away we went. Taylor was asleep by the time I got to the Shriners Hospital sign, which is literally like 250 feet from the door of the hospital and Ashtyn was out at the I-91 on ramp about 3 miles away. Ahhhhhhh silence :) They woke briefly in Brattleboro long enough to eat a bagel (as Mommy's dumb and forgot to bring cash for lunch) and back out they went for most of the ride back to the almost-Canadian border. We finally got out of the car at 6:45 (and lucky me I got to work 3rd shift after all that).
Back to reality
Since we left Taylor has hard her Dora armie on almost every second she's awake (and sometimes when she's sleeping) and she really likes it. She's so happy she can finally hold things in her armie. I can't thank the Shriners and Shriners Hospital staff enough. Thank you. Truly from the bottom of my heart, you'll never know how wonderful you've made my daughter's life and mine.
- Sent from my Palm Pixi
Saturday, June 4, 2011
Wednesday, April 27, 2011
Thursday, March 31, 2011
Friday, March 25, 2011
More than 2,000 Babies are Born Each Year with Limb Difference | November 8, 2010 | The O&P EDGE | oandp.com
http://www.oandp.com/articles/NEWS_2010-11-08_01.asp?sms_ss=email&at_xt=4d8c185fb4de53b6%2C0
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Sunday, March 13, 2011
giavanna's shrine maple sugar bowl pic
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Tuesday, February 22, 2011
It's gotta stop being like this.....
I appologize again for the lacking posts. Facebook has been my sort of 'updater' recently. I started working back in november at this call center and the hours were kind of weird and with ashtyn's school stuff in the mornings, I was pretty much too exhausted to even think. This went on from thanksgiving until mid january when things got a little more tricky. I found out about an opening nearby at a retirement housing facility (basically a nursing home but its for people who just need help with bathing and keeping their meds straight) so I was all excited to get it since it gets me back in the nursing field. So I had this oh so brilliant idea that i'd work both places. I'd be at the retirement home from 2-10:30pm and then fly over to the call center to work until 2am, or later depending how the night went. Thursday, friday and saturday were the 'easy' days cause I only did the retirement home, but it was from 10pm-6:30am..... So needless to say sleep wasn't happening and I left the call center. Now i'm enjoying the perks of a set schedule, awesome coworkers (which I did have at the call center too, and I miss a bunch of them), more regular & nice paycheck and I don't have to worry about not waking up to send ashtyn to school or pick her back up. And no more calls from the shady pantyhose guy is an added bonus. The only ral downfall is that jeremy and I don't see each other ever it seems. I come home and he's asleep or leaving to go to work himself so that sucks but we gotta do what needs to be done I guess. I do (usually) have every other weekend off so we do get to do family stuff a little just not as much as we were all used to. We did get to have our second post children date a couple weeks ago, barely. Luckily our friend tammy was home. She and her boyfriend watched the girls so we could go to vermont railroads 'christmas' party that they hold up here in the end of january. All you can eat and drink, for free, at eastsides restaurant!!! Oh yeah. I had to go into work at 10 so drinking wasn't an option this year but I think the amount I ate made up for what they would have spent on my booze. Their food is almost too good. Mmmmmmm. That's basically the jist of how things have gone lately and brings us up to the beginning of february. Then, my exploder decided it's rear wheels wanted to fall off. They didn't really fall off but they were close. Both the rear barings were gone and my rear brakes were destroyed. I told them an idiot light came on and asked them to check it out. The light never came on for them and no codes came up on the computer scan. Weird. So $800 later, I have my car back. A week goes by, the tranny slipped on me twice in the am. So I call the shop and they said to swing in the next time the light came on....so I do.....my tranny is dead. I guess some cooling thing went which caused the transmission fluid to run low thus killing my tranny......and the price tag for this fix................... $3700!!!!!! As if. Thank goodness my inlaws came to my rescue and loaned me their not-exactly-spare rig for a couple weeks. I was supposed to find out today if my warranty would cover anything but haven't heard a word as of yet :( who knows.
That's about it for my update. The only other thing(s) to add is the 'planned' date for sos2011 is saturday june 4th. I'm waiting for the confirmation from the springfield selectboard about the trail but everything is in the works :) Hope to see lots and lots of people there again this year!!!
Ps, in reguards to the walk.....some of my links on my blog are for last years stuff.....hopefully i'll have them all fixed in the morning, but for now i'm going to get some shut eye :)
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